Shots - Health Blog
4:13 am
Mon July 23, 2012

Hospital Specialists Help Remind The Sickest Kids They're Still Kids

Originally published on Tue July 24, 2012 1:52 pm

Yoselyn Gaitan, an 8-year-old with a shy smile, sits quietly in an exam room at Children's National Medical Center in Washington, D.C., wearing a tiny hospital gown. She looks a little uneasy as she waits to be brought back to the operating room for the final surgery on her cleft palate.

Kelly Schraf spots her through the curtain and tiptoes into her room.

Schraf is a child life specialist, a type of health care provider whose job is to help sick children and their families navigate difficult medical situations emotionally and psychologically while in the hospital. They do it largely through play — the basis of how a child learns and grows.

Schraf introduces herself to Yoselyn and her mother, and explains to them why she's there: "It's my job at the hospital to make it easier for you to be here and make it more fun." At the word "fun," Yoselyn begins to look a little more relaxed.

Schraf is straight out of college, which she followed with a mandatory 480-hour child life internship. Her favorite part of her job, she says, is "knowing that I can work with the hospital team and make [a child's] stay better."

Pediatric ear, nose and throat surgeon Rahul Shah says the doctors in the outpatient surgery unit are as grateful for child life specialists like Schraf as the patients are.

"It's really profound when you hear some of the most old school physicians or surgeons asking for something you would consider warm and fuzzy," he says. But those doctors insist that they need child life specialists largely because they make the unit more productive.

When the child life specialists aren't available, Shah says, "It's hard. You're pulling [children] sometimes away from the parents. The parents are upset. The child is upset. It heightens their anxiety. You bring them back to the operating room, and it's a lot harder to put them back to sleep and ... give them an IV."

Even if each visit saves only four minutes of the surgical team's time, he says, it can allow that team to accomplish an extra surgery each day.

There are about 4,000 child life specialists in the country. Most of them work in the acute units with the very sickest children. Liz Anderson, who, like Schraf, is 24, works in the oncology unit, where children often spend months at a time.

"I get to know them very, very well," Anderson says.

She's been working with 9-year-old Owen O'Hara for several weeks. He sits in his pajamas in an isolation room, a feeding tube in his nose. It's been less than a week since his bone marrow transplant, which his doctors hope will cure his leukemia; his immune system is still too vulnerable for him to be in the unit's playroom with the other kids. So yesterday, Anderson brought him a brand new set of Legos to play with.

"We're building an alien spaceship," Owen says.

Owen's mom, Jackie O'Hara, says child life specialists have made a huge difference in helping Owen understand what's happening to him, often explaining difficult medical concepts in child-friendly words.

But like all things in health care, child life programs come at a price. The 16 child life specialists at Children's National Medical Center cost about $800,000 a year, which gets passed on to patients and insurers.

Mark Wietecha, president and CEO of the Children's Hospital Association, says the cost is "greatly worth it." Child life specialists can minimize the trauma caused by a hospital stay — and that can pay dividends far into the future for a sick child, he says.

"It's really almost an insignificant amount of money on our national expenditure to let the sickest kids have some opportunity to a life and be re-assimilated," Wietecha says.

O'Hara couldn't agree more. The child life program, she says, is "like having a little bit of a normal life in the middle of something that's not normal."

Copyright 2012 Kaiser Health News. To see more, visit http://www.kaiserhealthnews.org/.

Transcript

STEVE INSKEEP, HOST:

It's MORNING EDITION from NPR News. I'm Steve Inskeep.

Today in Your Health, we meet specialists who can motivate you to make healthier choices. First, child life specialists. Their job is to help sick kids navigate difficult medical situations, which they do mostly through play. Jenny Gold of our partner Kaiser Health News visited Children's National Medical Center in Washington, D.C. to find out how they work.

JENNY GOLD, BYLINE: Eight-year-old Yoselyn Gaitan sits quietly in an exam room wearing a tiny hospital gown. She looks a little uneasy as she waits to be brought back to the operating room for the final surgery on her cleft palate. Kelly Schraf spots her through the curtain and tiptoes into her room.

KELLY SCHRAF: What's your name?

YOSELYN GAITAN: Yoselyn.

Yoselyn? My name's Kelly and I'm a child life specialist, so it's my job at the hospital to make it easier for you to be here and make it more fun.

GOLD: One of the scariest parts of surgery for a kid is the anesthesia mask, so Schraf brings Yoselyn the mask in advance, along with some sparkly stickers for decoration.

SCHRAF: The doctor is going to put sleepy air inside this hole and sometimes the sleepy air is stinky. Another little girl told me it smells like dirty socks. So what I have is special smells to put inside to make it smell good.

GOLD: Smells like bubblegum, cotton candy and strawberry. Yoselyn picks bubblegum. By the end of their visit, she's grinning. And so is Schraf.

I think my favorite part of the job is knowing that I made a difference in a child and a family's life, seeing them so stressed because they've gone through so many things that a child shouldn't have to experience, and knowing that I can work with the hospital team and make their stay better.

Surgeon Rahul Shah says the doctors in the unit are as grateful for the child life specialists as the patients are.

DR. RAHUL SHAH: It's really profound when you hear some of the most old school physicians or surgeons really asking for what you would consider to be warm and fuzzy. And they came up to us and said we need them.

GOLD: Dr. Shah says that's because child life actually makes the unit a lot more productive.

SHAH: When we have encounters without child life specialists, it's hard. You're pulling them sometimes away from the parents, the parents are upset, the child's upset. It heightens their anxiety. You bring them back to the operating room. It's a lot harder to put them to sleep. It's a lot harder to do the IV.

GOLD: There are about 4,000 child life specialists in the country. Most of them work in the acute units with the very sickest children. Liz Anderson, who, like Schraf, is bubbly, blond and 24, works in oncology.

LIZ ANDERSON: On my unit we have very long term families. I get to know them very, very well.

GOLD: Most of her job centers around play - the basis of how a child learns and grows.

OWEN TIMOTHY O'HARA: I'm Owen Timothy O'Hara. I like to build Legos, do art.

GOLD: Nine-year-old Owen has leukemia. He sits in his pajamas in an isolation room, a feeding tube in his nose. It's been less than a week since his bone marrow transplant and his immune system is still too vulnerable to be around other kids. So yesterday Anderson brought him a brand new set of Legos to play with.

O'HARA: I'm building an alien spaceship. This is like the cockpit thing that goes right here.

GOLD: Owen's mom, Jackie O'Hara, says child life specialists have made a huge difference in helping Owen understand what's happening to him.

JACKIE O'HARA: Medical terminology is a different language altogether and so it's scary. And they're able to take the scariness out of it.

GOLD: But like all things in health care, child life programs come at a price. The 16 child life specialists at Children's National Medical Center costs about $800,000 a year. It's part of the hospital's overhead, like electricity or maintenance. Mark Wietecha is president of the Children's Hospital Association. He says that's money well spent.

MARK WIETECHA: It's really almost an insignificant amount of money on our national expenditure to let the sickest kids have, you know, some opportunity to kind of have a life and get re-assimilated. So you know, our view of course is that this is greatly worth it.

GOLD: Jackie O'Hara couldn't agree more.

O'HARA: It's just like having a little bit of a normal life in the middle of something that's not normal.

GOLD: And for kids like Owen, even just a little bit of normal can feel priceless.

For NPR News, I'm Jenny Gold. Transcript provided by NPR, Copyright National Public Radio.

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